Joy has been doing well, though her health was a bit better when she was on the experimental medication, Denufosol, last year (we look forward to this and even better medications becoming available soon). She recovered from a pretty strong virus recently without any complications to her lungs. For all Joy's life, we have struggled to keep enough calories in Joy. However, she's been so healthy over the past couple years she now has a couple pounds she needs to grow into. (Respiratory infections really burn a lot of calories, so patients with CF are usually too skinny)!
Joy is experiencing somewhat of a traditional school day this summer. She has a math class all morning, then art all afternoon. She is at a local high school from 7:30 am to 3:30 pm Monday through Thursday. While she enjoys being with her best friend all that time, the schedule has been pretty stressful. Her extracurriculars have been reduced, but she still doesn't seem to have as much free time as she is accustomed to having.
Before taking a break from Karate, Joy earned her purple belt (one belt away from a brown belt). Piano has been put on hold this month as well, although she has thoroughly enjoyed learning, practicing, and performing on the piano in the past. Summer basketball has begun, though. Chuck is the head coach of her team. As the only girl on this co-ed recreational team, Joy had a tough time convincing her teammates that she could play just as well as most of them. However, she is certainly earning their respect. Joy will be attending her first sleep-away camp next week. While Ann was worried about Joy's medical treatments being well managed at camp, there is a church volunteer who has offered to monitor Joy's daily regime. So now the only concern is to get all of her equipment properly packed and labeled. Last on the list of Joy's activities, Joy has been going through physical therapy due to shortened Achilles Tendons in both of her legs (she often can't help but walk on her toes). Her orthopedic surgeon has warned her that surgery is the next step if she doesn't faithfully complete her exercises and treatment regime over the next three months.
Before taking a break from Karate, Joy earned her purple belt (one belt away from a brown belt). Piano has been put on hold this month as well, although she has thoroughly enjoyed learning, practicing, and performing on the piano in the past. Summer basketball has begun, though. Chuck is the head coach of her team. As the only girl on this co-ed recreational team, Joy had a tough time convincing her teammates that she could play just as well as most of them. However, she is certainly earning their respect. Joy will be attending her first sleep-away camp next week. While Ann was worried about Joy's medical treatments being well managed at camp, there is a church volunteer who has offered to monitor Joy's daily regime. So now the only concern is to get all of her equipment properly packed and labeled. Last on the list of Joy's activities, Joy has been going through physical therapy due to shortened Achilles Tendons in both of her legs (she often can't help but walk on her toes). Her orthopedic surgeon has warned her that surgery is the next step if she doesn't faithfully complete her exercises and treatment regime over the next three months.
With all that's going on, please keep Joy in your prayers!
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