eep this short due to time constraints. Sorry I’ve been negligent in keeping you up-to-date.Joy’s CF is well under control. She had a miraculous winter, with absolutely no respiratory infections (she had a virus last week lasting only one day thanks to the adjustment by her Osteopath). However, she is currently struggling with physical therapy for tight Achilles Tendons (due to toe-walking, that affects her running) and vision therapy for a slightly lazy eye. Her vision problem is not noticeable except that her left eye can only be corrected to 20/40, and her minimal lack of depth perception slightly affects her softball skills. She gets very frustrated that she must endure so many medical hardships, but we get very excited about recent CF research: http://investors.vrtx.com/releasedetail.cfm?ReleaseID=560382 (Joy has the F508delta CF mutation mentioned in the three paragraphs beginning at the title: About the Cystic Fibrosis Transmembrane Conductance Regulator Protein). Please keep Joy’s health and a CF Cure in your prayers – prayers work!
Here's a picture of Joy and her softball team. She’s on her knee on the far right. The picture at the top of this post is the goat we watch being born at our friends' ranch where we meet for science each week. She got to name the goat Ruby, and our friends added a middle name. The goat is now named Ruby Joy. Joy's friend jokes that it is Joy's goat that just lives with them.
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